| From
Tehelka Magazine, Vol 7, Issue 19, Dated May 15, 2010 |
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| CURRENT
AFFAIRS |
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cover story |
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WALK INTO Vidyasagar Amritsar
Medical Hospital and you get
some sense why. The hospital
has 310 patients, 110 of them women. Of
its 12 posts for psychiatrists, five are vacant.
Of the three clinical psychologists’
posts, two are vacant. In a 2008 National
Human Rights Commission (NHRC) report
assessing government hospitals, it received
a “poor” rating for its failure to provide
treatment and rehabilitation to the
patients. Sehwinder Singh, a senior doctor
at the hospital had few answers. He is
disposing of a stream of out-patients at a
factory pace. Tall, pleasant, he spends an
average of 2-5 minutes per patient. It’s
been a full day’s work and people are still
pouring in, including a recent bride in the
throes of a manic attack. Tranquiliser injections
are prescribed and the family
members directed to the out-patient center.
There is no counseling, no filing of
case history, no human touch. “We see at
least a hundred patients every day,” he
says, as if he’s mind-reading. “Sometimes
the system itself desensitises us.”
| Ratna Chibber gave up her
marriage to look after her
brother Sushil because her
husband resented him |
This is the hospital Asija had pulled his
son out of, after a 13-month stay. When
he had come home, Dheeraj was a medical
mess: his weight had dropped by
15kg; his haemoglobin level dropped; he
had swellings on his neck and legs, and
Asija strongly suspected sexual abuse.
“There are two kinds of patients at these
places,” says Asija. “Either you get
thrashed or you thrash others. My son
got thrashed.”
Walk into Ashreya — the first and only
government day-care facility for an estimated
66,000 mentally-ill patients in
Chandigarh, and all the dread impressions
are reinforced. Former Punjab Governor,
Lt. General Jacob had laid the foundation
stone for this center in 2002. He had even
sanctioned funds to make it a resident,
overnight facility. Six years later, however,
the centre has failed to acquit its mandate. It now caters more to people with mental
disabilities, rather than illnesses, though
at least half a dozen similar facilities for
the disabled already exist in the city. With
only one small room and a pocket-sized
lawn, barely 12 mentally ill people a day
can now use Ashreya as an interim shelter.
And that’s just one example of a longoverdue
initiative tripped by inscrutable
and faulty government policy.
But that’s just the urban story. A casual
visit to the government’s Institute of
Human Behaviour and Allied Sciences
(IHBAS) Institute in New Delhi — one of
the most reputed in India — is a dip stick
for what’s going on in rural India. Over
700 people turn up every day in the outpatient
department (OPD) here. That fact
that over 40 percent of these are from the
countryside speaks volumes about the government-run District Mental Health
Programme (DMHP) that has been in place
for three decades. The individual stories
of why some of these people have been
compelled to make the journey to Delhi
explain some of that chronic disrepair.
Mangeram, 38, is a vegetable seller
from a village near Saharanpur city in
western Uttar Pradesh. His teenage
daughter slipped into acute depression in
2008, as had his son and sister earlier. “My
life has gone in dealing with these illnesses,”
he says. He spent a futile Rs 30,000
over six months on private treatment for
his son in Saharanpur because there was
no health centre near his village. He has
finally found satisfactory treatment for
both his children at IHBAS, but has spent
over Rs 15,000 on medicines and travel
expenses in recent months, taking a loan against his farmland and cattle.
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| Photo: DIVYA GUPTA |
‘I Thought My Life
Was Finished’
ARASHAMMA, 60, PSYCHOSIS, Farmer, rural Bengaluru
LOSING ONE’S HUSBAND and a child
in quick succession can crumble the
bravest of hearts. Arashamma was no
exception. In 2001, her husband passed
away from an infected leg swelling. Two
years later, her adult son, who worked in
Bengaluru city, was murdered in mysterious
circumstances. Arashamma
slipped into an extended period of traumatic
shock. Only six years later was her
condition diagnosed as psychosis — an
abnormal condition of the mind involving
“a loss of contact with reality”.
For the period inbetween, Arashamma
seemed lost to the world. People
in her village, Channaveerahalli, 50 km
away from Bengaluru, were convinced
she had been possessed by evil spirits.
She often picked fights, talked to herself, packed up her clothes and ran off to different
places, such as a relatives’ house
or a nearby village. She stopped eating,
bathing, combing her hair, farming and
sleeping normally. “I’d pray at the temple,
falsely believing this would cure her,”
says one of her sons with whom she
now lives. Villagers stopped visiting her
fearing that they will “catch” her disease.
“They laughed behind my back,”
she says. “I felt my life is finished.”
After a chance meeting with Lakshmi
Dev Amma, a health worker from Basic
Needs, a rural mental healthcare NGO,
Arashamma began to recover. Amma
arranged a consultation with a physician
at the government’s primary health
centre. Today, she attributes her recovery
to the personal touch and regular follow-ups from Amma. “I became
everything because of her,” she says,
hugging her effusively. Amma was working
on other health issues in rural communities.
“I asked myself, why can’t we
work on mental illness?”
At first, Arashamma didn’t cooperate
with taking medicines. “I would pretend
to beat her with a stick to trick her into
having the pills,” her son says. The pills
induced drowsiness and slowed her
down enough to keep her from running
away from home. In time, signs of normalcy
emerged. Arashamma began to
chat up neighbours, focus on personal
care, and gradually started managing
both her home and the farm. For a year
now, she has been taking a 10-km bus
ride to the district health centre to fetch
free medicines. Even the people of her
village began to treat her normally.
“They understood that my illness was
just a medical problem,” she says.
Excited at the sight of people with a
camera, many in Arashamma’s village
gathered inside her small hut. Many
more stood outside. Clad in a purple silk
sari, Arashamma emerged from her
kitchen and offered us bananas. And as
she sat down, her chocolate brown face
broke into a shy, half-smile — the kind
that can only come from a spirit that is
free and not possessed.
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Forty five-year-old Ishrat, cloaked from
head to toe in a black burqa, is another example
of faulty treatments in small-town
India. Ishrat’s medical records reveal a diagnosis
of bi-polar disorder, but Rs 1.5
lakh (funded by a brother working in
Saudi Arabia) on private treatments near
their village in Muzaffarnagar town, also
in western Uttar Pradesh, yielded no benefits.
Says her daughter Nusrat with relief,
“Coming to IHBAS has helped, the medicines
here are finally having an effect.”
Anil, the 22-year-old son of a truck
driver with a monthly income of only Rs
5,000 is another example. Anil lost his ambition
to be an engineer and very the will
to live after he was forced ragged sexually
at the Government Polytechnic in Mahoba,
Uttar Pradesh. “No one at the local
health centre could deal with the problems
of the mind,” Anil says. IHBAS has
been treating Anil since December 2008.
“I am getting better now,” says he.
CLEARLY, THE DMHP has been a
failure. The government admits it
reaches only 125 of India’s 600-
odd districts. “The way the money is being
spent is not based on any efficient or evidence-
based models,” says Patel. “Getting
to the people is a genuine challenge,”
agrees former NIMHANS psychiatrist Srinivas
Murthy, who has worked with the
government’s mental health programme
and with the WHO. The real problem with
DMHP, says he, is that it is not decentralized.
One of the biggest problems is the
access to psychotropic drugs. According
to the WHO, there are now effective medical
interventions even for diseases like
chronic schizophrenia. In the US, such
drugs would cost no more than two dollars
a month. In India, though, these drugs
are not readily available. Even in Karnataka,
which is considered one of the
better states for mental health infrastructure,
the DMHP officially runs in only four
of its 29 districts. And though the state
government indents for 21 drugs for mental
illnesses and epilepsy, which should be
readily available at the Primary Health
Centres (PHC), Mani Kalliath of Basic
Needs says they never reach the PHCs.
“There are no technical barriers for any
Indian to receive medicines from public
health facilities and Tamil Nadu is an example,”
adds Abhay Shukla, an activist
with the NGO Jan Swasthya Abhiyaan.
“The irony is we are the largest pharmaceutical exporter in the developing world.”
The essential DNA of conquering mental
illness is realizing the art of the possible.
Several excellent private and NGO
initiatives across the India are emboldening
proof of that. The Banyan in Chennai,
which has rehabilitated over 1,500 women
and their families since it began. Mani
Kalliath’s Basic Needs in Banglore. The
Pingalwara institute in Amritsar, begun by
Bhai Puran Singh. And SCARF in Chennai,
founded by Sharda Menon, a Padma
Bhushan awardee.
Often, inspiration can have a ripple effect.
Ask Ratna Chibber. She gave up an
18-year-old marriage to look after her
brother Sushil, when her husband began
to resent his presence in their home.
Sushil’s mumblings and sudden idle
laughter used to be a social embarrassment.
“It was traumatic asking your own
brother to go inside a room when a guest
came. We would not do that to even a dog
in the house,” says Chibber, holding back
tears. “I was angry with my husband for
not being more compassionate then, but
I hold no grudges now,” says she. “It is true
that these illnesses can destroy families.”
Sushil was a high performer and had
got a mechanical engineering degree with
good marks. But he had begun to show
symptoms at 19 and a test at NIMHANS in
Bengaluru revealed subnormal IQ. Finally,
Chibber met Sharda Menon of SCARF in
Chennai. That was a turning point. “She
discussed his schizophrenia openly with
me. I felt so soothed. It had taken ten years
to get a clear diagnosis for him. Losing
those precious years did a lot of harm to
him,” says Chibber.
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